Monday, 27 May 2013

My Girl

Good morning girls!
A few weeks ago we had some terrible news. I closed my blog because I just couldn't talk to you about it at that point but I feel like now's the time.
My lovely Jenny has been suffering with blinding headaches and sickness, all day, every day for 10 weeks. I took her to the doctors over and over but they thought it was a migraine. Eventually she was referred to a specialist, who examined her thoroughly and admitted her to Royal Manchester Children's Hospital immediately. That night she had an MRI scan and it showed that she had a massive tumour in her brain.

Jenny was given steroids which immediately relieved the headaches and sickness. A team of neuro- surgeons were brought in from Hope Hospital and two days later they operated to try to remove as much as possible of the tumour to send for biopsy. They did a fantastic job.....she has the weeniest scar. The surgeon, who has daughters himself, didn't shave her head but carefully plaited her hair out of the way for her. I love that man with all my heart.

We had an excruciating 10 day wait for the results and sadly when they arrived they were the worst. Jenny has a grade 4 aggressive cancer. To complicate matters it's an extremely rare form which is normally found in the body but not in the head.

She made a fantastic recovery from her op and has since had a second op which was to remove more of the tumour. Now that they know what it is, they are fighting for her life and the surgeon went in more aggressively. There was a risk of damage to her motor skills but Thank God yet again he came up trumps and she has fully recovered again. She's home with me and we're relieved to have some normality again.
She'll now start the long battle of radiotherapy and chemotherapy and we have to pray with every fibre of our bodies and souls that they can get rid of this thing (I'm afraid Jenny and I call it some rather unladylike names!)
She will lose a lot of her hair, so we're busy making scarves and bandanas. Thankfully Jenny looks great in headgear.
My girl has amazed me. Right from that first awful night when the doctor told us she has been soooo strong and brave. She has such dignity and grace. I already knew what a special girl she was but even I am in awe of how she's handled this. She never complains....just keeps busy and happy. Everyone who is helping to look after her has just fallen totally in love with her.
I guess for the foreseeable future this blog will be pretty much about Jenny but we'll try to throw in some Making as well. Jenny is knitting a gorgeous cotton bandeau for her hair and she's found knitting a very good thing to do when she's bored but too tired to do much. Good old crafting eh?
Remember her in your prayers will you girls. Thank you so much.
Love,
Amanda xxxxx

20 comments:

  1. I have never commented before,and hope it doesn't sound trite, but I wish Jenny, and the family, all the luck in the world. I will most certainly mention her in my prayers. Love to you all. Deb x

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  2. Amanda....this is the worst, your daughter with this illness. I can only imagine how both you must feel and how very, amazingly proud you must be of your daughter. Yes, of course I'll pray for her as will so many others and you must remember that prayer is powerful...and it gives us the strength to cope. Love from Aubrey

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  3. I wish I could give you both a big cuddle, keeping everything crossed for Jenny and you are both in my thoughts and prayers - stay strong xxx

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  4. I have just sat here for a minute having a peek at so many of my favourite blogs that I seem to have missed lately to read this post. I am writing with tears in my eyes as I cannot imagine as the mother of a beautiful girl too what you must be going through. But if prayers can help her recover (and I do not often pray)I will be there praying with all your friends and family. My heart goes out to you all.

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  5. She, and you, have been in my prayers since I heard the news.

    Kick its arse, Jenny!

    xxx

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  6. Oh Amanda what terrible news, I will be thinking of you and Jenny as you begin this journey, stay strong as always xx

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  7. I'm so glad your blog will be about Jenny from now on and so glad you came by to update us all - been waiting for news but knew you would be busy. Loads and loads of very best wishes and massive hugs to your very brave girl. Thinking of you both and with you every step of the way, for what little that's worth on the journey ahead. Be strong. xxxxxxxxxxx

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  8. loads and loads of best wishes and may god bless u both xxx lots of welsh cwtches coming your way , be brave be strong xxx

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  9. Amanda I'm so glad you've told us about your beautiful daughter and the fight she has on her hands in the weeks ahead. My thoughts will be with you both during this challenging time. My love to you both.
    Anne xx

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  10. Women seem to be able to cope with the most impossible senarios and still get through. This will be you Jenny. You will endure and come out the other side. xxoo

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  11. I'm so so sorry to hear this terrible news,my thoughts are with you both at this time.I am in agreement with cuckoo KICK IT'S ARSE Jenny xxxxx

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  12. I wish you all strength to kick its butt, you are in my prayers. Keep strong and keep fighting. Hugs Sarah x

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  13. Sending you all our hopes, wishes and prayers. You are both special people.

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  14. have read your blog for ages but hardly ever comment....this is such difficult news for you to tell....my thoughts and very best wishes are with you and your daughter. isnt it amazing what strength of character some young people have that belies their years. use the blogging community for whatever can be of help xx

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  15. Dear Amanda, my heart goes out to you. I can't imagine what a scary time you have been going through together, and how tough the treatment is going to be. Thank God that you are together and that you have such a strong loving bond with each other. I will be praying for you and I believe that God has you both in His hands. xxx

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  16. Amanda,

    So sorry to hear this. I sincerely hope all goes well. It is probably difficult to keep strong. You will all be in my prayers.

    All things nice...

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  17. Thats so awful but your love shines through, God bless you both. xxx

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  18. I am so sorry to hear about your daughter, I had tears in my eyes reading it. I had wondered where your blog had gone, completely understandable though.

    Im sure you will both be strong for each other, you have such an amazing bond.

    Thinking of you both.

    Much love, Helenxx

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  19. I was so sad when you closed your blog, but I have to say upon checking the link on my blog today, I was totally surprised! So glad you are back, so glad to see you AND your sweet girl together, and so very sorry for you both to have to endure this. I absolutely will keep you both in prayer. I'm just so glad you have each other. xoxo

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